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May. 30, 2008 - CONNIE'S OVARIAN CANCER UPDATE #5

Iʼve completed my first treatment of 2 chemoʼs and Atavin (or placebo) and every thing went very well. No side effects yet but not sleeping to well and you can see. I went to bed about 10:00 PM and woke up at midnight. I am hoping by doing a little on the computer it will tire my mind and Iʼll then head back to bed. I was at the clinic from 9:30 AM until 3:30 PM. Treatment actually started about 11:30 AM. It always takes the longest on the very first treatment, trying to get everything coordinated.  It wasnʼt too bad. I read, visited with my sister a while, we ate lunch together then she left about 1:30. I took a short nap and read some more. I am told that the next treatment will only entail labs and the Gemzar chemo and should take about an hour. That one is scheduled on the 3td of June. Piece of cake.

Then on the 17th I have all three drugs again, but the time will decrease to about 3 hours as they will be decreasing the drip time on the Avatin from 90 minutes to 60. By the time I get to the 3rd treatment on the Atavin it will have been decreased to 30 minutes and remain there as long as I can tolerate it. So of course the sessions will also decrease. 

I am curious to see how I will be reacting after a couple of days have passed. Last time that was my worst days, but so far everything feels normal.

Well, Iʼm going to work on a chart for the research group, then take a stab at sleep again.

Talk to you all soon, love and warm hugs, 

Connie Deal

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May. 24, 2008 - CONNIE'S OVARIAN CANCER UPDATE

I had another CA125 tumor count done about 3 days ago and called for the results yesterday It unfortunately has climbed and is up to 157 now (normal range is 0-40). I do have another fairly fast growing tumor forming in my pelvic area near the last one that was removed. My doctor is anxious to get me started on chemo again before it progress’ much further causing me to possibly have bowel obstruction. My stomach muscles are still very sore from the last surgery, but improving daily. So, I think another surgery so close to the last one is out of the question unless it becomes an emergency.

Listen to this… timing is everything…

There just happens to be a research study program, in a limited number of locations affiliated with US Oncology Research, that has been opened and offered to onc/gyn physicians along with a small chosen group of their patients (200 total) with certain cancers to participate in . that happens to be me, my doctor and in my area.  AND…I am one of those that have been given the opportunity to participate.  I have signed up, but as of today I have not been accepted to participate. They are waiting for blood labs and urine reports first and will also be going over my records to see if I qualify.  I’m very hopeful though… Is God’s timing great or what???!!

It will be a blind study using the product called Bevacizumab (which inhibits tumor growth by blocking the formation of new blood vessels) produced by Genentech, Inc. No one will know who is getting what until the study is completed, not even the doctors. It has been FDA approved for colon and lung cancers… but not for ovarian, primary peritoneal, or fallopian tube carcinomas. Being a blind study means only half of those participating will actually receive the product and the other half will get a placebo. We would all be monitored very closely and have special tests performed through the process (CT’s and MRI’s, blood and urine tests, etc) all paid for by the research company. I will also be receiving my regular chemo treatments (not paid for by research) along with this and my doctor will be involved all the way in everything. I’m excited about it but I am leaving this decision in God’s hands as to whether I am accepted or if I receive the product or not.

I am scheduled for my first chemo treatment this coming Tuesday or Wednesday (conflict of which day is with the research group because of the Memorial Day holiday weekend). I’ll know for sure today or Monday.  I am confident this reoccurrence of cancer is only a minor set back and things will be okay. I will be given two different chemo’s but upon my research of them, they are not as harsh as the last ones. They are: Gemcitabine and Carboplatin.

I hate to keep asking for your prayers, but they worked so well last time for all of us that it’s just a must.

I love you all and will let you know as things move forward.

Connie Deal

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